Disease calculators & Outcome measures


General Tools

EULAR Outcome measures library
This is a comprehensive database of validated instruments (indices, questionnaires, scales, or others), with an emphasis on PROs used in rheumatology.
The database includes a detailed description of many instruments. It also includes:

  • Information about validation
  • Recommendations and rules for use and guidelines for interpretation of the results.
  • References and validated translated versions in the EU languages, with download if possible or link to an access page.

http://oml.eular.org

Measures of adult pain
Visual Analogue Scale for Pain (VAS Pain), Numeric Rating Scale for Pain (NRS Pain), McGill Pain Questionnaire (MPQ), Short-Form McGill Pain Questionnaire (SF-MPQ), Chronic Pain Grade Scale (CPGS), Short Form-36 Bodily Pain Scale (SF-36 BPS), and Measure of Intermittent and Constant Osteoarthritis Pain (ICOAP)
http://onlinelibrary.wiley.com/doi/10.1002/acr.20543/full


Rheumatoid Arthritis

EULAR Outcome measures library
This is a comprehensive database of validated instruments (indices, questionnaires, scales, or others), with an emphasis on PROs used in rheumatology.
http://oml.eular.org/

Patient-driven composite tools
The outcome measures listed below can also be found in the EULAR Outcome measures library (together with validation data and references):


Patient and provider composite tool
The outcome measures listed below can also be found in the EULAR Outcome measures library (together with validation data and references):


Patient, provider and laboratory composite tools


Spondyloarthritis (including psoriatic arthritis)

EULAR Outcome measures library
This is a comprehensive database of validated instruments (indices, questionnaires, scales, or others), with an emphasis on PROs used in rheumatology.
http://oml.eular.org/

Patient-driven composite tools
The outcome measures listed below can also be found in the EULAR Outcome measures library (together with validation data and references):


Provider completed indices tool


Patient, provider and laboratory composite tools
The outcome measures listed below can also be found in the EULAR Outcome measures library (together with validation data):


Osteoporosis and metabolic bone diseases

EULAR Outcome measures library
This is a comprehensive database of validated instruments (indices, questionnaires, scales, or others), with an emphasis on PROs used in rheumatology.
http://oml.eular.org/

Fracture Risk Assessment Tool (FRAX)
https://www.shef.ac.uk/FRAX/tool.jsp


Osteoarthritis

EULAR Outcome measures library
This is a comprehensive database of validated instruments (indices, questionnaires, scales, or others), with an emphasis on PROs used in rheumatology.
http://oml.eular.org

The outcome measures listed below can also be found in the EULAR Outcome measures library (together with validation data and references):


Systemic Lupus Erythematosus

EULAR Outcome measures library
This is a comprehensive database of validated instruments (indices, questionnaires, scales, or others), with an emphasis on PROs used in rheumatology.
http://oml.eular.org

Patient-driven composite tools
The outcome measures listed below can also be found in the EULAR Outcome measures library (together with validation data):

  • Systemic Lupus Erythematosus Activity Questionnaire
    (SLAQ: Validation of a Systemic Lupus Activity Questionnaire (SLAQ) for population studies. Lupus, Karlson EW, Daltroy LH, Rivest C, RamseyGoldman R, Wright EA, Partridge AJ, et al dis 2003; 12:280-286)
  • Lupus Damage Index Questionnaire
    (LDIQ: Development and initial validation of a self-assessed lupus organ damage instrument, Costenbader KH, Khamashta M, Ruiz-Garcia S, Perez-Rodriguez MT, Petri M, Elliott J, Manzi S, Karlson EW, Turner-Stokes T, Bermas B, Coblyn J, Massarotti E, Schur P, Fraser P, Navarro I, Hanly JG, Shaver TS, Katz RS ARD 2010; 62:559-568)
  • Brief Index of Lupus Damage
    (BILD; Brief index of lupus damage: a patient-reported measure of damage in systemic lupus erythematosus. Arthritis Care & Research, Yazdany J, Trupin L, Gansky SA, Dall'era M, Yelin EH, Criswell LA dis 2011; 63:1170-1177).


Provider completed indices tool
The outcome measures listed below can also be found in the EULAR Outcome measures library (together with validation data and references).

SLE disease activity indices:


SLE responder indices:


SLE damage indices:


A comprehensive overview of the indices used in SLE, can be found here:

Castrejón I, Tani C, Jolly M, Huang A, Mosca M.
Indices to assess patients with systemic lupus erythematosus in clinical trials, long-term observational studies, and clinical care.
Clin Exp Rheumatol 2014;32(5 Suppl 85):S-85-95.
http://www.clinexprheumatol.org/abstract.asp?a=8761
Article is free to view.

Lam GK, Petri M.
Assessment of systemic lupus erythematosus.
Clin Exp Rheumatol 2005;23(5 Suppl 39):S120-32.
http://www.clinexprheumatol.org/abstract.asp?a=2697
Article is free to view.


Systemic Sclerosis

EULAR Outcome measures library
This is a comprehensive database of validated instruments (indices, questionnaires, scales, or others), with an emphasis on PROs used in rheumatology.
http://oml.eular.org

Skin scoring


Disease activity indices

  • European Scleroderma Study Group (EScSG) activity index
    Combined Response Index for Systemic Sclerosis (CRISS).
    No calculator available.
    Melsens K, De Keyser F, Decuman S, Piette Y, Vandecasteele E, Smith V.
    Disease activity indices in systemic sclerosis: a systematic literature review.
    Clin Exp Rheumatol. 2016 Jul 6. [Epub ahead of print]
    https://www.ncbi.nlm.nih.gov/pubmed/27385265

Sjögren's Syndrome

EULAR Outcome measures library
This is a comprehensive database of validated instruments (indices, questionnaires, scales, or others), with an emphasis on PROs used in rheumatology.
http://oml.eular.org

Disease activity indices


Vasculitis

EULAR Outcome measures library
This is a comprehensive database of validated instruments (indices, questionnaires, scales, or others), with an emphasis on PROs used in rheumatology.
http://oml.eular.org

Disease activity indices and calculators


Myositis

EULAR Outcome measures library
This is a comprehensive database of validated instruments (indices, questionnaires, scales, or others), with an emphasis on PROs used in rheumatology.
http://oml.eular.org

Disease activity indices and calculators