Myositis

 

Criteria & Outcome Measures

1975 Bohan and Peter criteria
(N Engl J Med 1975;292:403-7)
http://www.nejm.org/doi/full/10.1056/NEJM197502202920807

Griggs criteria for Inclusion Body Myositis
(Ann Neurol. 1995;38:705-13.)
http://onlinelibrary.wiley.com/doi/10.1002/ana.410380504/full

Evaluation and construction of diagnostic criteria for inclusion body myositis.
(Neurology. 2014 Jul 29; 83(5): 426–433.)
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4132572/

2016 American College of Rheumatology/European League Against Rheumatism Criteria for Minimal, Moderate, and Major Clinical Response in Adult Dermatomyositis and Polymyositis: An International Myositis Assessment and Clinical Studies Group/Paediatric Rheumatology International Trials Organisation Collaborative Initiative.
(Arthritis Rheumatol. 2017 May;69(5):898-910)
http://onlinelibrary.wiley.com/doi/10.1002/art.40064/abstract;jsessionid=F5B0AA4562E94E743A62C6AB25A4290E.f02t01

 

Disease Scores & Online Calculators

Classification Criteria for Idiopathic Inflammatory Myopathies
Intern Med. 2016; 280:39–51.
http://www.imm.ki.se/biostatistics/calculators/iim/

Childhood Myositis Assessment Scale (CMAS)
Arthritis & Rheumatism. 2014: 50: 1595–1603.
http://onlinelibrary.wiley.com/doi/10.1002/art.20179/abstract

Cutaneous Assessment Tool (CAT)
Arthritis Rheum. 2008 Mar 15;59(3): 352–356.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2598766/

Rheumatology (Oxford). 2007 46(10):1606-11
http://www.ncbi.nlm.nih.gov/pubmed?term=PMID%3A%2017890275

Dermatomyositis Skin Severity Index (DSSI)
Br J Dermatol 2008;158:345–50
http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2133.2007.08342.x/abstract

Disease activity score for Juvenile Dermatomyositis
Arthritis Rheum. 2003 Feb 15;49(1):7-15.
http://onlinelibrary.wiley.com/doi/10.1002/art.10924/abstract

Modified Cutaneous Dermatomyositis Disease Area and Severity Index (CDASI)
Br J Dermatol 2010;162:669-73
http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2133.2009.09521.x/abstract

Myositis Disease Activity Assessment Tool (MDAAT)
Arthritis Rheum 2008;58:3593-9 & Rheumatology (Oxford) 2004;43:49-54
http://onlinelibrary.wiley.com/doi/10.1002/art.23963/abstract

Summary of IMACS disease activity core set measures:
https://www.niehs.nih.gov/research/resources/imacs/diseaseactivity/index.cfm

Summary of IMACS disease damage core set measures:
https://www.niehs.nih.gov/research/resources/imacs/diseasedamage/index.cfm

 

Patient Organizations

Myositis Support Group (UK)
The Myositis Support Group is a UK charity providing advice and support to individuals and their families affected by Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile Dermatomyositis
http://www.myositis.org.uk

The Myositis Association
The Myositis Association provides support to myositis patients and their families, works on establishing connections with medical and patient communities and providing funding for research
http://www.myositis.org

 

Recommendations & Guidelines

Proposed preliminary core set measures for disease outcome assessment in adult and juvenile idiopathic inflammatory myopathies
(Rheumatology (Oxford) 2001;40:1262–73)
https://academic.oup.com/rheumatology/article/40/11/1262/1784014/Proposed-preliminary-core-set-measures-for-disease

Immunosuppressant and immunomodulatory treatment for dermatomyositis and polymyositis. Cochrane database Syst Rev 2012;8:CD003643. doi:10.1002/14651858.CD003643.pub4
http://dx.doi.org/10.1002/14651858.CD003643.pub4

The evidence for immunotherapy in dermatomyositis and polymyositis: a systematic review.
Clin Rheumatol 2015;34:2089–95. doi:10.1007/s10067-015-3059-y
https://link.springer.com/article/10.1007%2Fs10067-015-3059-y

 

Scales & Questionnaires

Inclusion body myositis functional rating scale: a reliable and valid measure of disease severity
Muscle Nerve 2008;37:473–6. doi:10.1002/mus.20958
http://onlinelibrary.wiley.com/doi/10.1002/mus.20958/abstract

Myositis Activities Profile (MAP)
J Rheumatol 2002;29:2386–92
http://www.jrheum.org/content/29/11/2386.long

IMACS Myositis Damage Index (MDI) (pdf form)
https://www.niehs.nih.gov/research/resources/assets/docs/myositis_damage_index_pdf_format_508.pdf

Myositis Functional Index-2 (FI-2)
Arthritis Rheum 2006;55:114–22
http://onlinelibrary.wiley.com/doi/10.1002/art.21715/abstract