Disease calculators and outcome measures

general tools
rheumatoid arthritis
Spondyloarthritis (including psoriatic arthritis)
Osteoporosis and metabolic bone diseases
osteoarthritis
Systemic lupus erythematosus
Systemic sclerosis
Sjogren's syndrome
vasculitis
myositis

general tools

EULAR Outcome measures library
This is a comprehensive database of validated instruments (indices, questionnaires, scales, or others), with an emphasis on PROs used in rheumatology.
The database includes a detailed description of many instruments. It also includes:

Information about validation
Recommendations and rules for use and guidelines for interpretation of the results.
References and validated translated versions in the EU languages, with download if possible or link to an access page.

http://oml.eular.org

Measures of adult pain
Visual Analogue Scale for Pain (VAS Pain), Numeric Rating Scale for Pain (NRS Pain), McGill Pain Questionnaire (MPQ), Short-Form McGill Pain Questionnaire (SF-MPQ), Chronic Pain Grade Scale (CPGS) , Short Form-36 Bodily Pain Scale (SF-36 BPS), and Measure of Intermittent and Constant Osteoarthritis Pain (ICOAP)
http://onlinelibrary.wiley.com/doi/10.1002/acr.20543/full

RheumCalc

For a website that contains many different tools: https://rheumcalc.com

Rheumatoid arthritis

Patient-driven composite tools
The outcome measures listed below can also be found in the EULAR Outcome measures library (together with validation data and references):

Routine assessment of patient index data 3 (Rapid3)
https://www.rheumakit.com/en/calculators/rapid3
Patient Activity Scale (PAS)
http://www.rheumatology.org/PracticeQuality/Clinical-Support/Quality-Measurement/Disease-Activity-Functional-Status-Assessments
Patient Activity Scale II (PASII)
http://www.rheumatology.org/PracticeQuality/Clinical-Support/Quality-Measurement/Disease-Activity-Functional-Status-Assessments
Health assessment questionnaire disability index (HAQDI)
https://www.rheumakit.com/en/calculators/haq_di

Patient and provider composite tool
The outcome measures listed below can also be found in the EULAR Outcome measures library (together with validation data and references):

Clinical Disease Activity Index (CDAI)
https://www.rheumakit.com/en/calculators/cdai

Patient, provider and laboratory composite tools

Simple Disease Activity Index (SDAI)
https://www.rheumakit.com/en/calculators/sdai
(can also be found on http://oml.eular.org/ )
Disease Activity Score 28 (DAS28) CRP or ESR
https://www.rheumakit.com/en/calculators/das28
https://www.rheumakit.com/en/calculators/das28_crp

Spondyloarthritis (including psoriatic arthritis)

Patient-driven composite tools
The outcome measures listed below can also be found in the EULAR Outcome measures library (together with validation data and references):

Bath Ankylosing Spondylitis Global (BASG) score
http://www.asas-group.org/education/clinical-instruments/patient-reported-outcomes
Bath Ankylosing Spondylitis Disease Activity Index (BASDAI)
http://www.asas-group.org/education/clinical-instruments/patient-reported-outcomes
Bath Ankylosing Spondylitis Functional Index (BASFI)
http://www.asas-group.org/education/clinical-instruments/patient-reported-outcomes
Ankylosing Spondylitis Quality of Life (ASQoL) scale
http://www.asas-group.org/education/clinical-instruments/patient-reported-outcomes
Health Assessment Questionnaires for the Spondyloarthropathies (HAQS)
http://oml.eular.org/oml_search_results_details.cfm?id=39&action=All%20information&lightbox[iframe]=true&lightbox[width]=90p&lightbox[height]=90p
Dougados Functional Index (DFI)
http://oml.eular.org/oml_search_results.cfm?oml_search_results.cfm?action=showResults&confirm=yes (click on Dougados Functional Index)
ASAS Health Index
http://www.asas-group.org/education/clinical-instruments/asas-health-index/

Provider completed indices tool

Bath Ankylosing Spondylitis Metrology Index (BASMI)
http://nass.co.uk/silo/files/basmipdf.pdf
(can also be found on http://oml.eular.org/ )
Psoriasis Area Severity Index (PASI)
http://pasi.corti.li/

Patient, provider and laboratory composite tools
The outcome measures listed below can also be found in the EULAR Outcome measures library (together with validation data):

Ankylosing Spondylitis Disease Activity Score (ASDAS)
http://www.asas-group.org/education/clinical-instruments/asdas-calculator/

Osteoporosis and metabolic bone diseases

Fracture Risk Assessment Tool (FRAX)
https://www.shef.ac.uk/FRAX/tool.jsp

Osteoarthritis

The outcome measures listed below can also be found in the EULAR Outcome measures library (together with validation data and references):

OARSI/OMERACT measure of intermittent and constant osteoarthritis pain (ICOAP)
The ICOAP is a recently proposed questionnaire for lower limb pain
(Osteoarthritis Cartilage 2009;17:12936)
http://www.sciencedirect.com/science/article/pii/S1063458409001083
WOMAC validation study
The WOMAC is the most widely used questionnaire to assess pain, stiffness and function in OA – it is copyrighted.
(J Rheumatol 1988;15:183340)
http://www.ncbi.nlm.nih.gov/pubmed/3068365
AUSCAN questionnaire for assessment of pain, stiffness and physical function in hand OA
http://www.sciencedirect.com/science/article/pii/S106345840290837X
The FIHOA for assessment of physical function in hand OA
http://www.ncbi.nlm.nih.gov/pubmed/7583182
Knee Injury and Osteoarthritis Outcome Score (KOOS)
http://www.jospt.org/doi/abs/10.2519/jospt.1998.28.2.88?url_ver=Z39.882003&rfr_id=ori%3Arid%3Acrossref.org&rfr_dat=cr_pub%3Dpubmed&
Hip disability and osteoarthritis outcome score (HOOS)
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC161815/
Knee injury and Osteoarthritis Outcome Score (KOOS)
https://www.rheumakit.com/en/calculators/koos

Kellgren & Lawrence score (K&L)
https://www.rheumakit.com/en/calculators/k_l
Cartilage Lesion Score (CALS)
https://www.rheumakit.com/en/calculators/cals
Reviscosupplementation Score
https://www.rheumakit.com/en/calculators/re_vs

Systemic Lupus Erythematosus

Patient-driven composite tools
The outcome measures listed below can also be found in the EULAR Outcome measures library (together with validation data):

Systemic Lupus Erythematosus Activity Questionnaire
(SLAQ: Validation of a Systemic Lupus Activity Questionnaire (SLAQ) for population studies. Lupus, Karlson EW, Daltroy LH, Rivest C, RamseyGoldman R, Wright EA, Partridge AJ, et al dis 2003; 12:280-286)
Lupus Damage Index Questionnaire
(LDIQ: Development and initial validation of a self-assessed lupus organ damage instrument, Costenbader KH, Khamashta M, Ruiz-Garcia S, Perez-Rodriguez MT, Petri M, Elliott J, Manzi S, Karlson EW, Turner-Stokes T, Bermas B, Coblyn J, Massarotti E, Schur P, Fraser P, Navarro I, Hanly JG, Shaver TS, Katz RS ARD 2010; 62:559-568)
Brief Index of Lupus Damage
(BILD; Brief index of lupus damage: a patient-reported measure of damage in systemic lupus erythematosus. Arthritis Care & Research, Yazdany J, Trupin L, Gansky SA, Dall'era M, Yelin EH, Criswell LA dis 2011; 63:1170-1177).

Provider completed indices tool
The outcome measures listed below can also be found in the EULAR Outcome measures library (together with validation data and references).

SLE disease activity indices:

British Isles Lupus Assessment Group Index (BILAG)
http://www.clinexprheumatol.org/abstract.asp?a=2697
European Consensus Lupus Activity Measurement (ECLAM)
http://www.clinexprheumatol.org/abstract.asp?a=8761
Systemic Lupus Activity Measure (SLAM)
http://www.ncbi.nlm.nih.gov/pubmed/11434575 and http://www.clinexprheumatol.org/abstract.asp?a=2697
Systemic Lupus Erythematosus Disease Activity Index (SLEDAI, with SELENA modification)
http://www.rheumatologie.at/pdf/sledai.pdf
Lupus Activity Index (LAI)
http://www.clinexprheumatol.org/abstract.asp?a=8761

SLE responder indices:

Responder Index for Lupus Erythematosus (RIFLE)
SLE Responder Index (SRI)
BILAG Based Combined Lupus Assessment (BICLA)
http://www.clinexprheumatol.org/abstract.asp?a=8761

SLE damage indices:

System Lupus International Collaborating Clinics/ACR Damage Index for Systemic Lupus Erythematosus (SLICC/ACEDI)
http://www.clinexprheumatol.org/abstract.asp?a=2697

A comprehensive overview of the indices used in SLE, can be found here:

Castrejón I, Tani C, Jolly M, Huang A, Mosca M.
Indices to assess patients with systemic lupus erythematosus in clinical trials, long-term observational studies, and clinical care.
Clin Exp Rheumatol 2014;32(5 Suppl 85):S-85-95.
http://www.clinexprheumatol.org/abstract.asp?a=8761
Article is free to view.

Lam GK, Petri M.
Assessment of systemic lupus erythematosus.
Clin Exp Rheumatol 2005;23(5 Suppl 39):S120-32.
http://www.clinexprheumatol.org/abstract.asp?a=2697
Article is free to view.

Systemic Sclerosis

Skin scoring

Modified Rodnan Skin Score
http://www.bloodjournal.org/content/suppl/2009/08/12/blood2009-02-204156.DC1/Document1.pdf?sso-checked=true

Disease activity indices

European Scleroderma Study Group (EScSG) activity index
Combined Response Index for Systemic Sclerosis (CRISS).
No calculator available.
Melsens K, De Keyser F, Decuman S, Piette Y, Vandecasteele E, Smith V.
Disease activity indices in systemic sclerosis: a systematic literature review.
Clin Exp Rheumatol. 2016 Jul 6. [Epub ahead of print]
https://www.ncbi.nlm.nih.gov/pubmed/27385265

Sjögren's Syndrome

Disease activity indices

EULAR Sjögren's Syndrome Disease Activity Index (ESSDAI)
Ann Rheum Dis 2010;69:11039
http://ard.bmj.com/content/69/6/1103.abstract
EULAR Sjögren’s Syndrome Patient Reported Index (ESSPRI)
Ann Rheum Dis 2011;70:96872
http://ard.bmj.com/content/70/6/968.abstract

Vasculitis

Disease activity indices and calculators

Birmingham Vasculitis Activity Score (BVAS v.3)
Ann Rheum Dis 2009;68:182732
http://ard.bmj.com/content/68/12/1827.abstract
Birmingham Vasculitis Activity Score for Children
J Rheumatol 2012 Feb 15
http://www.ncbi.nlm.nih.gov/pubmed/22337238.1
Vasculitis Activity Index
Arthritis Rheum 1999;42:2365–71
http://www.ncbi.nlm.nih.gov/pubmed?term=PMID%3A%2010555032

Myositis